Monday, Monday, Monday

So in my "old life" I always dreaded Mondays....the weekend was over and it was the start of a new, usually 5 day, work week. I wish now that I wouldn't have dreaded those Mondays, but instead welcomed them. A new day that you are alive and breathing should be one to be celebrated. You should be happy to get up and get going in the morning and go to work...thankful for a job to pay the bills, "socialize" with others...no matter how tedious the work or how much there's that "one person" you just can never get along with. Today, I would much rather have the dreaded Monday morning "gotta get up and go to work" then sitting around the house not being able to do much of anything in fear of not being able to breathe.

I am a bit anxious today that it is Monday. For the next few weeks I will be looking forward to the Mondays that I once hated. I'm waiting to hear back from Cleveland in regards to if they are going to put me on the list or not. The only thing I know is that the doctors meet on Mondays (not sure mornings...or afternoons...or all day...) and they will discuss my case in the next few weeks. I've only had 1Monday since I was at Cleveland last and I honestly don't expect to hear anything until probably the end of the month. However, I am still anxious each Monday that rolls around and wondering if I will get the call to be listed. My birthday is on the 27th and is on a Sunday...I told Doug hopefully I will have a wonderful birthday present with a phone call to list me on the 28th. So we will see. I just emailed my transplant coordinator this morning about something else and asked if she knew when they would be meeting about my case. I'm anxiously waiting to hear back from her. :)

Tomorrow I am headed back to one of the two rheumatologists I've seen over the past 2 years. The pain I've been having in my chest and back just aren't going away. I've also had headaches almost daily that ibuprofen doesn't even help. I've had to decrease my prednisone (steroid) dose to 10 mg in order to do transplant and I think being on the higher dose has made me not aware of the pain before. I'm not too thrilled with this rheum. that I am seeing tomorrow as he does not believe Cleveland and that I am as bad as what they say. I haven't been to him since January, so I'm a little anxious about my appointment tomorrow. Doug has to work tomorrow evening, and my appointment is at 4 in Dayton...but I am hoping that he can go with me and maybe go in to work a little late.I just don't know if I want to handle this doctor on my own. ;) My pulmonologist in Cleveland threw out fibromyalgia...so we will see. I do have some of the signs and symptoms,especially where the pain is located. I hope that he will be able to help me with pain management. I surely don't like taking vicodin nearly every day just in order to sleep at night. :(

As soon as I get that phone call, I will make sure to post and let everyone know. Thank you all for your continued support, prayers and love! :) I sure am one lucky gal!