Below is a link to a wonderful blog article that explains me and the way I feel quite well. Everyone is always asking how I am doing or how I feel and they also go on about how good I look. I usually just smile and comment with an "I'm here" answer. I usually do not feel well and don't really feel like dwelling on it, so it's easier just to say, "I'm here". Really, that's as good as it gets. I am here. Things could be worse and I am thankful that I am at least here to feel the pain even though it sucks.
I have already posted the article link on my Facebook wall, so some of you may have read it already. If you're not on Facebook (or not my "friend" on there...ask me, I'll be "friends") :) then read away! :)
Quick update before you get to the article link...I finally got scheduled for my first IVIG infusion. I will go Tuesday at 9 am, and it should last at least 4 hours. I'm a little nervous about it, but I'm sure all will be fine. I sure hope this helps bring my antibody levels up!! I also got my schedule for my next Cleveland visit....going back up May 7....just appointments besides the usual lung function tests, bloodwork, and chest xray.
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
Happy Easter everyone!!
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