Finally got home late last night. I didn't know if I would be going home, but I saw one of the transplant doctors about 4 pm and he said I could go home. We didn't actually get out until after 6, so it was a late night. They treated me with antibiotics and steroids and like I had pneumonia. The air found in my chest cavity was explained that I had been coughing so much and irritating my airways that my bronchioles were "blowing up" and thus seeing the extra air on the scans. On Friday I had to go for a barium swallow test to make sure my esophagus wasn't leaking air. It wasn't. About an hour after the test my right cheek started to swell and before long my entire face, and neck was about twice the size. It is uncomfortable, but the doctors said it is harmless and will go away on it's own. May be a few days, a week, 2 weeks. Hopefully soon because I look horrendous and it is uncomfortable. Not only that, but as we were driving home last night I tried to lie down and sleep. How I was positioned made my left eye go swollen shut. It's better today but my left eye is half open, my right eye is fully open, my face is 2-3 times normal size. The kids didn't know what to think when they saw me last night, haha!
I asked the transplant doctor if there was anything to help relieve the pressure in my face and he said not really but that I could up my oxygen and that should help bring it down quicker. They did a quick walk on me before I left to see what amount of O2 I should be on...I was at 2L, now I am at 4L. Hopefully I'll start to feel a little better and can come down from that amount. One of the transplant coordinators came in the room to tell me that she wanted to call me tomorrow (today) to make sure we had everything covered so that my case could be presented next week. She said, "I want to make sure we have everything so that we can get you listed." So, I'm taking it that I will get listed...at least I sure hope so! She did call me today and we will go back up for appointments the week of Feb.13. Not sure what day...she wasn't sure at the time, but will FedEx the papers today so we should have them tomorrow.
It was so nice to get home to see the kids. They had a banner for me and balloons. I was so out of breath and so tired (and funny looking) that I didn't seem as excited as I wanted to be. :( They were so sweet though and it was good to give them hugs and kisses. It was a little bit of a rough night last night. It was good to be home,but scary I wasn't in the hospital in case something happened. But I made it through and today was a little bit better. Hopefully the rest of the day goes well and I can get some rest tonight.
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