Woke up this morning not feeling the greatest. I slept ok but still have a lot of mucous that I just can't get out. Nurse gave me some nausea meds that didn't work too well so got more and those made me loopy. They also made me feel like I just can't do this. If I can't handle this upper respiratory infection and feeling this way how in the world am I suppose to get through a double lung transplant? Aye! I wish life would just go back to the way it were. I know that there is no such thing, but wishful thinking I guess. It doesn't help that I have been in some sort of hospital since Tuesday night either...not really seeing the light of day....going just a tad stir crazy. I don't feel much like being on the computer, or feel much like doing anything really. Doug has been totally awesome (no, he's not writing this, lol) he is going crazy too...poor guy. I have such a great guy. Glad we are already married because seeing me yesterday with my funny face I would have my doubts! lo!l I know that I drive him crazy (he's already told me this) but he is here with me and I love him very much.
So, not too much other info really. I had a chest xray this morning and also an echocardiogram. I will have another echocardiogram with bubble (for transplant testing) tomorrow morning. We are waiting on infectious disease to see what will happen there. My antibodies are low and at some point I will have to have infusions, but it is unsure if/when they will do IgG infusions. The dr. said today that we may do them while here, but that is probably unlikely right now. We will also see from infectious disease if I will go home with pill form antibiotic or iv port. Hopefully the pill form!!! I really don't want to go home with an iv...but we'll see I guess. Dr. Akindipe said that my case will likely be presented next Monday (not tomorrow) because all of my info will not be gathered and together for tomorrow. So I should know if I am listed next week or not.
I think that about covers it for now. When I first got here on Thursday I had to smile for some of you that know my "cabana boy" story. When I was in the hospital last year I pretended to be on the beach with cute cabana boys fanning me and bringing me margaritas. Well I get here on Thursday and I actually had 2 cute cabana boys, for real! :) They wanted to start 2 ivs, (one in each hand) so my bed was raised and there was a cute cabana boy on each side of my bed! They just were not fanning me and bringing me margaritas...dang it. Funny thing is that Doug was on his way here yet and before this I had texted him telling him that I had a really hot nurse. The reply to my text was "Yes!!" I smiled because he had no idea my nurse was a male and not female. I had to laugh when he walked into the room and figured out who my nurse was. haha! He's a good sport! :)
I just want to thank everyone again for everything. Doug and I feel truly blessed to have so many loving and caring people in our lives. We appreciate all of the help with the kids, prayers, words of encouragement, etc. It is all amazing!!
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